young girl laying on grass

Making visible the mental health needs of children and young people from Gypsy and Traveller communities by advanced data linkage

Principal investigator: Professors Louise Condon and Ann John
Institution: Swansea University
Location: UK
Funding Period: 2018-2020

Professors Louise Condon and Ann John want to identify the specific mental health needs of young Gypsies and Travellers, giving health services the tools to provide better, more targeted support.

The project

Previous research has found that mental illness is rife in the Gypsy and Traveller community, often linked to poverty, social exclusion and stigma. But because there is no option for people to identify as a Gypsy or Traveller on medical questionnaires, our knowledge of the issues people face and how to improve support for their needs is hugely limited.

Louise and Ann will be working to transform our understanding – in particular in relation to young people. We know almost half of Gypsies and Travellers are under the age of 15, and in a recent study many young Gypsy/Travellers said that discussing mental health issues was ‘shameful’.

Using an innovative data matching technique, Louise and Ann will identify the particular mental health needs of young Gypsies and Travellers. Ultimately, they want to help change attitudes to mental illness in these communities and give health services the tools to provide better support – based on genuine evidence.

The process

Data scientists from Swansea University have developed a technique to match people from Gypsy/Traveller sites with their health records for the first time. The research is limited to Gypsies and Travellers living on sites because ethnicity data are not routinely collected in the NHS, and so it is not possible to trace Gypsies and Travellers living in houses in health databases.

This means Louise and Ann can determine which mental health conditions are commonly experienced by young people living on Traveller sites in Wales under the age of 25 years. They will also find out how often they use health services, if at all.

Louise and Ann will compare their results with a group of young people of the same age, who also live in disadvantaged circumstances, allowing them to identify the specific mental health conditions that young Gypsy/Travellers experience. The study will be supported using the MQ-funded Adolescent Data Platform for Mental Health Research.

The potential

This work will shine a light on the mental health needs of young people from one of the most marginalised communities in the UK.

Louise and Ann’s findings will be shared with mental health services, paving the way for vital improvements in how mental health services engage with – and care for – young people in Gypsy/Traveller communities.

Professors Louise Condon and Ann John

Louise Condon and Ann John work at Swansea University, where Louise is a Professor of Nursing and Ann is a Professor in Public Health and Psychiatry.

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