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EFFIP (E-support for Families and Friends of Individuals affected by Psychosis): A randomised controlled trial of a coproduced online intervention for carers

Psychosis is the most common severe mental illness that affects 1% of the population. Coping with psychosis is often a challenging demand for the individual as well as for everyone close to them, including family members, relatives, partners and close friends (referred to as carers hereafter). The EFFIP (E-support for Families & Friends of Individuals affected by Psychosis) Project team comprising people with lived experience of psychosis, carers and professionals, has developed an online resource, called COPe. COPe provides information, peer support and coping strategies for their caregiving roles and promotes self-care. The current study aims to evaluate the clinical effectiveness of COPe in improving carers' wellbeing and other health related outcomes, compared to the waitlist-control.

Details:

We are looking for:

Inclusion

  • Carers who are aged 18 or over
  • Those who have at least weekly contacts with the cared-for person, although these contacts could be in a variety of formats, e.g. face to face, phone calls, emails, or social media such as facebook, twitter, text messages
  • Living in England during the study period
  • Able to communicate in English in usual online communications
  • Have daily access to the internet

Location:

  • Online/home-based

Expenses:

To thank you for taking the time to participate, participants will be offered a goodwill payment, upon completion of each of the 4 rounds of online questionnaires (i.e. £10 for the first, £5 for the second and third respectively, and £10 for the fourth and last). We will offer an additional £10 goodwill payment for those who give an interview to talk about their experience of using the online resource.

Contact information:

Contact JACQUELINE for more information.

Phone: 07817 027035

Email: jasin@sgul.ac.uk

Visit the study website:

http://cope-support.org/get-involved

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